Being Normal & Surgery Scheduled

Today all I wanted to do was be NORMAL, get out of the house and grocery shop and be like everybody else(no migraines, no pain, no stares, no whispers)! So me and the kids took an adventure to the school supply store and was that a mistake! The kids and I were in the store no longer then 15 minutes when my little girl decided to pee on the floor and my big guy decided to knock over a turn table! I wanted to be normal because why??? LOL...you gotta love kids!

Getting to the point of the story, ever since we were told about the surgery on Monday I feel disconnected from the world(except for a few WONDERFUL people). I feel like people look at me like I'm fragile and are contagious! I DO NOT have the plague people! I am not contagious and I will not fall apart by just looking at me! Yes, I have a Malformation in my brain but I am really just exactly like you and really miss being treated like one of you! Sorry for the rant just had to get that out!

Chiari Malformation is were part of your brain has extended into the spinal canal and is blocking fluid from flowing correctly to your spine. My brain is blocking most of the fluid from exiting and entering the brain(traveling) so most of the fluid is trapped in my brain or neck, causing pain, symptoms, and migraines due to the pressure built up in my brain and neck. I hope this helps you all understand it a little better, its not something you are going to catch by looking at me or touching me, I promise! I was born with this, but just currently started having more symptoms from it due to the increase in pressure.  Here is a great website to read about it if you would like to know more...http://www.chiariinstitute.com/chiari_malformation.html

I also got a phone call today from the surgery staff my surgery is scheduled for February 16th, 2011 at 7am! Hoping everything will be lined up and figured out before then!